I was diagnosed in 2004. The diagnosis reaffirmed that something was definitely not okay with me, but so many questions still remained. A severe lack of quality pain treatment has left me with extreme difficulties from one day to the next.
This is extremely disconcerting. I haven’t lived close to a doctor in nearly 7 years. Two of mine are out-of-state, which means at least an hour or so, sometimes longer, one way. Forget refills, because they physically make you come and pick them up, refusing to put any narcotic prescription in the mail. Many primary care physicians just want to pass pain patients off to “pain management” places where you’re treated like cattle. Every single pain management place I’ve been recommended to had an enormous waiting list just to get in the door. I don’t know about all of us, but I don’t have 2-3 years to “wait” for an appointment. I could be dead by then! Nor do I need to be lectured about how my pain isn’t as important as someone else’s. Denouncing a person’s pain is a huge part of the problem here as well.
Ultimately, we should all do research beforehand and make the decision that is right for us.
Self-care is so important. Self-abuse is unhealthy.