Domestic Violence: A Hidden Cost Of Disability
Speak Out For Migraine & Social Security Disability Today
Making Big Plans When You Don’t Know What Your Health Situation Will Be
*This happens to me when I travel too. Pretty much every time I fly, I get a migraine either before I’m off the plane, or within 48 hours. Thankfully people that know me understand I might just disappear early one and lay down until the following day. No one takes it personally, and they go out of their way to make sure the temperature is just right and there’s no noise whatsoever.*
Candesartan: Effective Preventive, Low Weight Gain Risk
What Fibromyalgia Feels Like
A lot of people are living with Fibromyalgia and are undiagnosed or not being treated for it. Men are much less apt to be diagnosed with it because it is considered a “woman’s illness”, but that’s total bullshit because I know more than 6 men that clearly have it.
I have never been formally treated for Fibromyalgia, and I’ve had it for more than 10 years. Initially all my doctors blew my symptoms off. They had an excuse for every single symptom I had, and chose to treat separate things. I’d be treated for the migraines, but not treated for everything else I was experiencing. At the start of it all, I had a crick in the left side of my neck for about 6-8 months that was so painful I wanted to die. An MRI showed an actual injury, I did not have a pinched nerve, so I was handed several different prescription pain medications and a prescription for muscle relaxers and informed that I would “have this for the rest of my life”. When Cymbalta was approved by the FDA and released in 2004, I demanded my doctor put me on it immediately. All of my local pharmacies didn’t even have it, they were literally calling other stores in other states to try to get it for me, but it took them months to get it in stock. My doctor went to a dinner for the drug, something he doesn’t usually do because he doesn’t have the time, and brought me back a ton of samples. For several years, Cymbalta made me feel almost normal again, until it stopped working. I tried Lyrica about five years ago and the first dose or two put me on the floor, I couldn’t even move on that stuff. I have not tried the newer drugs, but I do want to find a way to manage the pain better. I don’t know if there will ever be a cure for Fibromyalgia, but I certainly hope that the next generation gets to see one because life is way too long to suffer like this your entire life.
Photo Credits: Shaun & Dawn
The Fibromyalgia Myth
This FREAKS ME OUT. I have been tested for Lyme Disease more than once, but I am going to request a re-test due to some of the things I have been experiencing of late, just to be on the safe side. For some of us, I think we need to be tested and re-tested because Lyme Disease is no joke. Neither is Fibromyalgia, but there’s no denying that the symptoms are the same and if we’re not seeing any relief, maybe there’s a misdiagnosis somewhere along the line. How amazing would it be if some of us could get our lives back and not have to suffer to the extent that we do?
I don’t think it hurts to double-check and find out if any of this applies to some or maybe even all of us. Better safe, than sorry. Don’t be afraid to speak up, ask questions, and be your own advocate.
When Your Neighbors Give You A Headache, Literally
I experienced a lot of this when I lived in an apartment. I had neighbors above me who were constantly noisy as all hell, the only time they were quiet was when they weren’t home. The TV was always blaring, or video games, or music, and it was way too much for me. I can’t tell you how many times I had to ring their doorbell and tell them to take it down 20 notches. They’d do it in the moment, but a few days later they’d be back at it. It’s one of the reasons I don’t think I could ever share walls with people again. I have noisy neighbors here too, but I have no qualms whatsoever about telling them to knock it off, especially when I’m sick.
MSG & Migraines
I have found that I’m sensitive to MSG, but not all of the time. If something is heavily dosed, I will get a headache pretty quickly from it, but if it’s a small amount, it won’t affect me. We’re all different in this respect, but this is still good info to have.
*This is for all of us who are battling something… Give ’em hell!!*