The Loneliness Of Illness And Pain
Do You Have The Energy & Strength?
“The image that comes to mind is a boxing ring. There are times when…you just want that bell to ring, but you’re the one who’s losing. The one who’s winning doesn’t have that feeling. Do you have the energy and strength to face life? Life can ask more of you than you are willing to give. And then you say, ‘Life is not something that should have been. I’m not going to play the game. I’m going to meditate. I’m going to call “out”.’
There are three positions possible. One is the up-to-it, and facing the game and playing through. The second is saying, Absolutely not. I don’t want to stay in this dogfight. That’s the absolute out. The third position is the one that says, This is mixed of good and evil. I’m on the side of the good. I accept the world with corrections. And may, the world, be the way I like it. And it’s good for me and my friends. There are only the three positions.” ―Joseph Campbell
What Fibromyalgia Feels Like
A lot of people are living with Fibromyalgia and are undiagnosed or not being treated for it. Men are much less apt to be diagnosed with it because it is considered a “woman’s illness”, but that’s total bullshit because I know more than 6 men that clearly have it.
I have never been formally treated for Fibromyalgia, and I’ve had it for more than 10 years. Initially all my doctors blew my symptoms off. They had an excuse for every single symptom I had, and chose to treat separate things. I’d be treated for the migraines, but not treated for everything else I was experiencing. At the start of it all, I had a crick in the left side of my neck for about 6-8 months that was so painful I wanted to die. An MRI showed an actual injury, I did not have a pinched nerve, so I was handed several different prescription pain medications and a prescription for muscle relaxers and informed that I would “have this for the rest of my life”. When Cymbalta was approved by the FDA and released in 2004, I demanded my doctor put me on it immediately. All of my local pharmacies didn’t even have it, they were literally calling other stores in other states to try to get it for me, but it took them months to get it in stock. My doctor went to a dinner for the drug, something he doesn’t usually do because he doesn’t have the time, and brought me back a ton of samples. For several years, Cymbalta made me feel almost normal again, until it stopped working. I tried Lyrica about five years ago and the first dose or two put me on the floor, I couldn’t even move on that stuff. I have not tried the newer drugs, but I do want to find a way to manage the pain better. I don’t know if there will ever be a cure for Fibromyalgia, but I certainly hope that the next generation gets to see one because life is way too long to suffer like this your entire life.
Photo Credits: Shaun & Dawn
Lyrics are NSFW and might offend some people.
House Of The Rising Sun
This was such an awesome performance.
To Understand Or Not Understand…
“Some friends don’t understand this. They don’t understand how desperate I am to have someone say, ‘I love you and I support you just the way you are because you’re wonderful just the way you are.’ They don’t understand that I can’t remember anyone ever saying that to me. I am so demanding and difficult for my friends because I want to crumble and fall apart before them so that they will love me even though I am no fun, lying in bed, crying all the time, not moving. Depression is all about ‘If you loved me you would.” ―Elizabeth Wurtzel